Independent Living Series Resource List

Organizations for People Who Are Deaf-Blind

American Association of the Deaf-Blind (AADB)
8630 Fenton St., Suite 121
Silver Spring, MD 20910-3803

Mailing address:
P.O. Box 2831
Kensington, MD 20891
TTY: 301-495-4402
Video Phone: 301-563-9107

AADB is a national consumer organization of, by, and for Americans who are deaf-blind. It offers a quarterly publication, sponsors a mentoring program for youth who are deaf-blind, and hosts biennial national conferences.

DB-LINK Information Services
NCDB: The Teaching Research Institute
Western Oregon University
345 N. Monmouth Ave.
Monmouth, OR 97361
TTY: 800-854-7013

DB-LINK is the largest collection of information about deaf-blindness worldwide. Specialists respond to direct requests via the phone, website, conferences, and various electronic media.

Deafblind International (DbI)
P.O. Box 143
Burswood, WA 6100
+61 8 9473 5400
TTY:+64 8 9473 5488

DbI is a world association that promotes services for people who are deaf-blind. It publishes a journal twice a year, provides information in various media, encourages the development of networks, and hosts world conferences.

Deaf-Blind Retreat
c/o The Lighthouse for the Blind, Inc.
P.O. Box 14959
Seattle, WA 98114
TTY: 206-436-2231
Videophone: 206-452-5712

This retreat is for adults who are deaf-blind who can make independent decisions and are 18 and older, or are 16 and older and attending with a parent or adult friend. People with a variety of backgrounds, languages, and communication modes attend.

Helen Keller National Center for Deaf-Blind Youths and Adults (HKNC)
141 Middle Neck Rd.
Sands Point, NY 11050
TTY: 516-944-8637
Videophone: 516-570-3626 or 866-351-9089

HKNC provides intensive vocational and rehabilitation training at its headquarters, and it also provides support services through regional centers throughout the United States.

National Deaf-Blind Equipment Distribution Project (NDBEDP)
TTY: 888-320-2656

This federal program helps people who are deaf-blind connect with family, friends, and the community. The program provides free communications technology, including installation, training, and technical support. To be eligible, you must be deaf-blind, meet income requirements, and be able to use the equipment after training. Equipment must be related to telecommunication such as phone calls, texting, emails, and Internet use. Examples include braille devices, computers, mobile devices, phones, and signalers.

101 Pentonville Rd.
London N1 9LG
United Kingdom
0845 127 0060
Textphone: 0845 127 0062

Offers individualized services across the United Kingdom to a variety of people who are deaf-blind or who are deaf or blind with other disabilities, assisting them to be as independent as possible. Sense works with all ages and provides housing, educational, and recreational opportunities. In addition, Sense provides information about deaf-blindness.

Websites on Deaf-Blindness

A-Z to Deafblindness

This site, developed by an individual who is deaf-blind, provides information about deaf-blindness, including common causes, communication modes, equipment, articles, and resources.

American Sign Language University

This site offers free online sign language classes, as well as information about American Sign Language (ASL) and the deaf community.

Deafblindness Web Resource

This site includes information about deaf-blindness, communication and technology, magazines and periodicals, resources, and fact sheets on causes.
(sponsored by the Minnesota Department of Human Services, Deaf and Hard of Hearing Services Division)

This site includes information on deaf-blindness as well as resources on services, professionals, and organizations.

(Submitted by: Patti Jacobson and Ginger Irwin; Last updated: July 31, 2013)

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