Resources for People Who Are Deaf-blind

Organizations for People Who Are Deaf-Blind

American Association of the Deaf-Blind (AADB)
8630 Fenton St., Suite 121
Silver Spring, MD 20910-3803

Mailing address:
P.O. Box 2831
Kensington, MD 20891
TTY: 301-495-4402
Video Phone: 301-563-9107
Fax: 301-495-4404

AADB is a national consumer organization of, by, and for Americans who are deaf-blind. It offers a quarterly publication, sponsors a mentoring program for youth who are deaf-blind, and hosts biennial national conferences.

DB-LINK Information Services
NCDB: The Teaching Research Institute
Western Oregon University
345 N. Monmouth Ave.
Monmouth, OR 97361
TTY: 800-854-7013
Fax: 503-838-8150

DB-LINK is the largest collection of information about deaf-blindness worldwide. Specialists respond to direct requests via the phone, website, conferences, and various electronic media.

Deafblind International (DbI)
P.O. Box 143
Burswood, WA 6100
+61 8 9473 5400
Fax:+61 8 9473 5499
TTY:+64 8 9473 5488

DbI is a world association that promotes services for people who are deaf-blind. It publishes a journal twice a year, provides information in various media, encourages the development of networks, and hosts world conferences.

Deaf-Blind Program
The Chicago Lighthouse for People Who Are Blind or Visually Impaired
1850 W. Roosevelt Road
Chicago, IL 60608
312-666-1331 voice
312-666-8874 TTY
Videophone number: (866) 675-0924
Joann Rushing and Mindy Joy Mayer
Mindy Joy Mayer's TTY number: (312) 421-4788

The Deaf-Blind Program serves people throughout the state of Illinois who are deaf-blind. Services include information and referral, case management and advocacy, sign language and braille training, independent living skills training, career guidance, and other social services. Staff provide Braille phone/Deaf-Blind Communicator training and assist with other communication devices, including TTY phone equipment with large visual display and braille accessories.

Deaf-Blind Retreat
c/o The Lighthouse for the Blind, Inc.
P.O. Box 14959
Seattle, WA 98114
TTY: 206-436-2231
Videophone: 206-452-5712
Fax: 206-436-2234

This retreat is for adults who are deaf-blind who can make independent decisions and are 18 and older, or are 16 and older and attending with a parent or adult friend. People with a variety of backgrounds, languages, and communication modes attend.

Deaf-Blind Service Center
1620 18th Ave., Suite 200
Seattle, WA 98122
206-323-9178 Voice
Video Phone: (206) 323-9178
Fax: (206) 328-8497

Provides services to residents of the state of Washington who are deaf-blind or have a condition that will result in deaf-blind. Its goal is to help people who are deaf-blind reach and maintain their highest possible quality of life and degree of personal autonomy.

Helen Keller National Center for Deaf-Blind Youths and Adults (HKNC)
141 Middle Neck Rd.
Sands Point, NY 11050
TTY: 516-944-8637
Videophone: (516) 570-3626 or (866) 351-9089
Fax: (516) 944-7302

HKNC provides intensive vocational and rehabilitation training at its headquarters, and it also provides support services through regional centers throughout the United States.

LeCOBDA (Club of Blind-Deaf Adults)
c/o The Chicago Lighthouse for People Who Are Blind or Visually Impaired Deaf-Blind Program
1850 W. Roosevelt Road
Chicago, IL 60608
312-666-1331 voice
312-666-8874 TTY
Videophone number: (866) 675-0924
Joann Rushing and Mindy Joy Mayer
Mindy Joy Mayer's TTY number: (312) 421-4788

Monthly social group for people who are deaf-blind.

National Deaf-Blind Equipment Distribution Project
1-800-825-4595 voice
1-888-320-2656 TTY

This federal program helps people who are deaf-blind connect with family, friends, and the community. The program provides free communications technology, including installation, training, and technical support. To be eligible, you must be deaf-blind, meet income requirements, and be able to use the equipment after training. Equipment must be related to telecommunication such as phone calls, texting, emails, and Internet use. Examples include braille devices, computers, mobile devices, phones, and signalers.

National Family Association for Deaf-Blind (NFADB)
141 Middle Neck Road
Sands Point, NY 11050
516-944-8637 TTY
800-255-0411 ext. 275 Voice
516-883-9060 Fax

This national network of families focuses on issues related to deaf-blindness.

Project Reach: Illinois Deaf-Blind Services
Philip J. Rock Center
818 DuPage Blvd.
Glen Ellyn, IL 60137
630-790-2474 Voice
800-771-1158 Voice/TTY

Project Reach addresses the needs of children who are deaf-blind and their families. It provides technical assistance and consultation, information, training, and family support.

101 Pentonville Road
London N1 9LG
United Kingdom
0845 127 0060
Textphone: 0845 127 0062

Offers individualized services across the United Kingdom to a variety of people who are deaf-blind or who are deaf or blind with other disabilities, assisting them to be as independent as possible. Sense works with all ages and provides housing, educational, and recreational opportunities. In addition, Sense provides information about deaf-blindness.

Texas DeafBlind Project
Texas School for the Blind and Visually Impaired (TSBVI)
1100 W. 45th St.
Austin, TX 78756
(512) 454-8631
(512) 206-9451 TTY
(512) 206-9450 FAX

This project provides information and training to families and professionals regarding the needs of children who are deaf-blind.

Web sites on Deaf-Blindness

A-Z to Deafblindness
This site, developed by an individual who is deaf-blind, provides information about deaf-blindness, including common causes, communication modes, equipment, articles, and resources.

American Sign Language University
This site offers free online sign language classes, as well as information about American Sign Language (ASL) and the deaf community.
(sponsored by the Minnesota Department of Human Services, Deaf and Hard of Hearing Services Division) This site includes information on deaf-blindness as well as resources on services, professionals, and organizations.

Deafblindness Web Resource
This site includes information about deaf-blindness, communication and technology, magazines and periodicals, resources, and fact sheets on causes.

(Submitted by: Diane O'Neill; Last updated: April 5, 2013)

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