Managing Social Gatherings with Vision Loss
Join us as we chat with author Hannah Fairbairn about the tips and tricks she has learned to take some of the stress out of holiday get-togethers, no matter your vision.
Hadley Presents
Managing Social Gatherings with Vision Loss
Presented by Ricky Enger
Ricky Enger: Welcome to Hadley Presents. I'm your host, Ricky Enger, inviting you to sit back, relax, and enjoy a conversation with the experts.
In this episode, we discuss confidently handling social gatherings with blindness or low vision. And our guest is author Hannah Fairbairn. Welcome to the show, Hannah, so great to have you.
Hannah Fairbairn: Hello, I'm delighted to be here.
Ricky Enger: And this is not your first time on the show, so welcome back, but for those of you who don't know Hannah, we'll just get a quick introduction and tell us a bit about yourself.
Hannah Fairbairn: I was born with cataracts, some babies are, and when I grew up, there was no support at school, absolutely none, except I sat in the front row. And then when I was 33, my good retina detached and it couldn't be fixed back. Then my other one started to detach. I had this giant loss of sight at 33 and ended up legally blind with just a little bit of vision. I was already a consumer of services, legally blind, and I was the parent of a kid.
And then I became a teacher at the Carroll Center for the Blind teaching personal management. Well, to start with, when I arrived, that was about cooking and laundry and grooming and shopping. But a couple of our clients came to me and said, "One aspect of personal management is how to interact with sighted people on the street, in a store, at doctors' offices, and of course, at parties and gatherings." And this was so obviously true.
We began to create little classes, little groups and big groups, discussing how to deal with this. We called them interpersonal skills and we role played and discussed all the obvious difficulties that people with low vision or blindness have in interacting. I have to say, we would have some really funny times as well as very emotional times. Eighteen years after I began there, I retired to write my book, When You Can't Believe Your Eyes. And of course, the second half of it is all about self-advocacy and a great deal of it about going to gatherings of all kinds. I'm delighted to be here.
Ricky Enger: That's fantastic because I know that it's something that we all struggle with as we approach the fall and winter holidays as we're recording this. There are gatherings all the time and it's supposed to be a time of celebration, but a lot of people approach it with this sense of trepidation because it feels like there are so many pitfalls to navigate if you're trying to figure out how to communicate effectively, how to just get through these social situations and hopefully have a good time along the way.
I'm hoping that we can talk about some of the scenarios that people often encounter as they're going to a social gathering and then give some tips and tricks for how to alleviate the stress and the dread that can come with figuring out what to do in these situations.
The first question that I have is about when gatherings are in a different environment. You're not at home, you're going somewhere that isn't so familiar to you. Are there things that you do ahead of time to kind of prepare for success? And then is that different depending on the size of the gathering that you're going to?
Hannah Fairbairn: Yes, it's very different. And the bigger the gathering, the more you have to prepare ahead. That's the first thing to understand because the bigger the gathering, the more visual the communication gets. People make eye contact, they wave, they smile, they kind of point to where they're going to meet. It's all about seeing. And of course, we can't do that. With a big gathering, you have to prepare. And the less sight you're left with, the more you have to prepare. And really with no sight, you have to prepare like crazy. And this is true.
First you have to decide whether it's worth going to the event because of all the preparation. And I wanted to encourage people to go, especially after the pandemic. We're all a bit out of practice. What you do is you're going to call, first of all the host or the place where it's going to be, and you're going to get lots of basic information about the type of event, where it's going to be held, whether it's a sit down meal or a buffet, what other people will be wearing.
And then perhaps most important of all, who else is coming? Because if you have some friends on the guest list, then that's your next step, to call a friend or two, get yourself a ride if you're not already going with someone, and then arrange to meet one or two friends at the event, have someone you're going to eat the meal with and arrange to have a good catch up chat with another friend. It makes a huge difference that you've prepared ahead. That's for big events. I should also say that informal events, events where people stand and move around, are more difficult than ones where there's a seating plan and a reception line. Those are the big gatherings.
A small gathering, six, eight, ten people seated around the table, is what almost anybody with vision loss prefers. At a casual event, a standing event, people turn their backs, they walk away. At a table, everybody's seated, the table itself provides a structure for the event. You might not have thought of this, but it's true. And people mostly stay in the same seat. They don't turn their backs. You find out where people are seated and then you can really relax and have a pretty good time. While at a big event, it's much more like work. You go because it's good for you, but it's work.
Ricky Enger: Great. You've alluded already to the fact that there are different types of gatherings, there are small gatherings and large gatherings, and there are different expectations and different ways that you plan for those things. How does it differ if you are getting ready for a gathering with family that maybe you have some history with, you already know at least some of the people, and if you're getting ready for a gathering where maybe you do know a couple of people, but primarily it's people that you don't know well?
Hannah Fairbairn: I think the difference is in expectations because we often think that a gathering with family, perhaps family that you don't see often, who don't know much about your vision impairment or blindness, is actually generally more difficult, more painful. It may bring up your grief because your cousin or whoever that you used to be able to see clearly and sort of enjoy his funny faces or something, now it's a blur or you can't even tell where he is. That can be painful right there. But also, people who you don't see much and who aren't comfortable with vision loss can even, and quite often do, make what they think are jokey remarks or insensitive remarks about your vision loss. And when it comes from somebody that you value, that you've always liked, or even people you don't like, it can cut really deep.
I do think when you're fairly new to vision loss, you want to make sure that you have kind of a protector at the event. Don't just go by yourself thinking, "Oh, I know them all, it'll be fine." It actually may be quite not fine. And so, it's good to line up one particular sister or brother or someone who's going to look after you at the event because people might not think of giving you a plate of food or finding you a drink. You do need support. And then in time, you'll get more comfortable and hopefully your family will also learn about vision loss. You'll teach them and it will all get more comfortable. But to begin with, it can really be a shock.
When you go to an event where you don't know anyone very well, this is a better place to experiment with, and if you're ready for it, saying something about your vision loss. You're going to keep it short, and not medical. If you're up for it, you could just say, "I'm having a bit of trouble with my eyes these days," or, "I can't see much in this light." Keep it really simple.
If you go with a companion, of course, it's easier, but people do tend to talk to the person they're making eye contact with. You might even do better going off by yourself for a bit or even the whole thing. And make sure that a member of staff, or maybe you can see it for yourself, puts you beside the refreshments or the bar where there's plenty of circulation. Then, just start to chat to someone who seems to be by him or herself. Again, you could say something about your vision or not, it's a very difficult decision to make, to say something about your vision. It feels like you're leaving ordinary life, even when you say very little. And maybe the person will offer to get you a drink. If you can leave that event having had pleasant conversations, I consider that a big success. You've laid some groundwork for yourself.
Ricky Enger: And maybe it depends on what your general personality is as to the kinds of strategies that are going to work for you and something that feels very true to you. And I guess having this group of strategies in your back pocket, so to speak, for how to deal with different situations means that you're having to do less thinking on your feet, which for some of us can be a really good thing, just to have a plan ahead of time.
Hannah Fairbairn: Yes. The more you can think through the gathering that you're going to go to, think what might happen, think how you will want to respond, and then having, as you say, various strategies in your back pocket that you thought through and really know what you can cope with and what can't, the more successful you will feel at the end, the more you'll feel, "Wow, I did it."
Ricky Enger: Exactly. And that's what you hope for. There are a few things that feel universal, some struggles that are very basic elements of communication that can be really difficult if you're lacking that visual aspect. For these things, it would help to have some tips on how to navigate them. And I had to chuckle as we were putting this list together of things that happen. And I was thinking, "Yes, I've had all of these happen and more than once." And so, any strategy is helpful. We'll just go through a couple of these real quick and maybe give some tips for how to handle it. My favorite is how do you find out who you're talking to? That's such a simple thing, but it feels really awkward, right?
Hannah Fairbairn: It does feel really, really awkward. And of course, it happens to people who see perfectly well also. And as we all know, the longer you leave it, the worse it gets. Do you try to speak up pretty near the beginning with some slight apologetic phrase? This depends on how much you want to disclose your vision loss. You could say, "I'm just not able to recognize you in this light," or, "I'm having real trouble with facial recognition." Or you could say, which is what I now say after many, many years, "I have very little sight and I can't see faces," but that comes after a lot of practice.
It's not wise and it's kind of dangerous to say, "I've forgotten your name," because it could turn out to be your close neighbor or something and they're going to think you're really, really standoffish. But if you can just practice something like, "Having trouble with my eyes," and suddenly people realize why you're not responding to their visual cues and they get more comfortable with you and you are more comfortable. Things kind of proceed more easily once you've sort of admitted that you can't recognize them.
Also, if you're meeting someone for the first time and they say their name, if you can tie the name to the face and the type of body they have, it's good to repeat the name back and ask how to spell it so that it really goes into memory. And if you really like them, you could ask them to dictate it onto your smartphone or something.
Ricky Enger: Absolutely. What about that moment when you sort of wish the floor would swallow you up because you realized that you've been talking and you trail off and nobody's saying anything and apparently you've been talking to the air?
Hannah Fairbairn: I know, this is really a killer. It is embarrassing, there's no doubt. Kind of comes with the territory. You need to be listening as you talk and make sure that the person's responding. If you do find you've been left, it's good to say something. "Oh, he left. Oh."
Ricky Enger: Right. People know you know now.
Hannah Fairbairn: Yeah, people know you know and that makes it better. And of course the other one is where you respond, which I do, to a remark intended for someone else. And again, you just acknowledge it. Don't let it lie there because otherwise people might think that you're not aware. Just say, "Oh, sorry," and the conversation moves on. And it's not important, though it feels awful.
Ricky Enger: It does.
What about if a conversation catches your attention and you're like, "Oh, I really have something to jump in there," or, "This group seems interesting." It can be really awkward to kind of muscle your way into this conversation that's already happening. Are there ways to do that gracefully?
Hannah Fairbairn: This is a tricky one. I do think that the most important thing is not to hover on the outskirts. Joining a group who are talking is a visual thing and it's said to be a complex one. Somebody looks up, sees you, makes eye contact, kind of makes a little space in the group. It's all visual. What you have to do is be bold, which is not the easiest. And it's easier if you have a white cane, if you're ready to carry a white cane. But in any case, you'd need to walk up, be cheerful and firm and say, "Do you mind if I join you? My name's Hannah." They probably won't mind that. There's no way to do it other than with confidence.
Ricky Enger: All these are really, really helpful tips for navigating things that happen more often than might feel comfortable, but I think the more practice you have, the more likely you are to approach it with, I guess, bravery and more confidence.
Hannah Fairbairn: Yes, and more comfort with where you are in your own journey with vision loss. It feels so alien to begin with. And then gradually you begin to get comfortable with it, and even think that in some aspect, you turn into a really good problem solver and a really good listener.
Ricky Enger: Here's one that I don't hear spoken about that much, but it is one that has happened to me on a number of occasions and I think it happens to others as well. If you have for whatever reason gotten to the gathering early, here you are, the host is running around getting all the last minute things done and there's that feeling of being parked in a corner and you just feel useless and pointless as you sit there and everybody else has something to do. Are there any strategies for figuring out a way that you can contribute and be a part of that preparation before the gathering happens? Even if you're in an environment where you don't really want to go running around and knocking things over, is there still a way that you can contribute and feel like you're a part of things?
Hannah Fairbairn: People with full sight who are feeling a bit nervy and anxious before the gathering begins are very apt to try to park a person with vision loss. It's very, very common because it kind of makes them, the host or whoever, feel comfortable that they've got you dealt with, "Oh, she's there." But do not allow yourself to get parked unless you're in real pain and you really have to. Say, "Oh no, I don't want to sit down. Thanks." And try to find a seat next to the kitchen because the kitchen is often where everything's going on. Or just stand, not in the entry or you'll be in the way, but kind of just beside it, and try to get into the conversation. Be very cheery and admire like crazy. This is to be positive and outgoing, whatever you feel like inside, which can be pretty uncomfortable but better than getting parked.
Now, if you know the host, you could call up and ask about the event, which would be very wise, and then say, "Could you save me a job? I can count plates. I can roll silverware into napkins. I can put cookies on plates. I can put glasses on trays. Just leave me a job or two and I'll sit somewhere and do it."
There was a sociologist, a very famous sociologist writing in the 1960s. He said, "Present yourself in the way you wish to be perceived." What it means is you have to project a positive, cheery image so that the people who are rushing about will get a bit more chatty and will get a bit more comfortable with you. But you have to get this idea that you have to present yourself as a really more than adequate person who's up to everything and needs to be included because you're worth it. It does take courage to do it, but we all get there in the end because it's the way that works.
Ricky Enger: Absolutely.
We've talked a lot about attending gatherings elsewhere, but maybe you are feeling confident enough to have a gathering in your home. And there's some pluses to that because it's your own environment, you're very familiar with it, but are there things that you can do when you're hosting a gathering just to make sure that everything does run smoothly and to make sure that nobody's kind of stepping in and taking over things that you have well in hand?
Hannah Fairbairn: Yes, good one. Again, you're going to think through the situation. And if you haven't done this for a while, it might be good to start very small. Just invite two or three neighbors or good friends in and put everything you're going to serve on a tray. You could even plug in a coffee maker, put it all on a coffee table, on a side table, everything ready. And then when the doorbell rings, greet them and seat them. This is your home, so you need to make it clear that you're in charge here. And again, that's very hard to begin with, but it's your home and you don't need anybody to take over, provided you're all prepared.
And then if you seated people, you know where Michelle is sitting and where Brian is sitting and so on. And then you invite them to help themselves so you don't have to do any pouring. Because you're the host and the natural center of the gathering, you don't have to worry too much about the conversation going all about soccer or something or all about the latest movies.
When you graduate to a slightly bigger gathering, I would have everybody, again, sitting around the table just like we talked about before. And you prepare everything, keep it really simple, maybe a one pot meal with some rolls or maybe a chopped salad, and then lay out trays to receive dirty dishes. And you can either invite people to serve themselves, you've got it all ready, or you can serve them and just ask for one person to help.
You can point out that it's not safe if somebody comes in and interferes. The visual ideas that people have, the ideas they have about blind people carrying hot things or sharp things or things on the stove, are only made hazardous by their presence and by their interfering with what you're doing. That's the hazard. You don't want any stray people in your kitchen while you're getting things ready.
If you're ready to disclose, you could say, "If you don't put things where I tell you, there may be a big crash later on." It just depends how comfortable you are. And yeah, it is very hard to be different. It's really tough and it does take time to get up this feeling of confidence and firmness and telling others how you want things to proceed.
Ricky Enger: Well, for a variety of reasons, people may be attending gatherings but not in person. Virtual gatherings certainly were instrumental in getting a lot of us through the pandemic and we're still in that situation. Again, for a variety of reasons, perhaps you all can't be together geographically, there are health reasons. There are any number of things that would prevent people from being together. I'm wondering if there are things that are specific to virtual gatherings and maybe even some things that are less of a challenge in those environments as opposed to being in person. Do you have tips on things that people haven't thought about if they're attending a virtual gathering and what they can do to make things easier for themselves?
Hannah Fairbairn: Yes, indeed. If you have some useful vision, I recommend getting on a Zoom call on your own tablet or your own laptop because then you can get on the speaker view, which is when you see the person who's speaking right up close. I can see things that I couldn't see in real life. That can be a real advantage.
Another thing is that if you don't want to be on the screen, you can just do the Zoom as an audio call and then you will not be visible to the others even if they can see each other. And that's fine and you can catch up and you're in your own home and comfortable and it can be quite pleasant.
Ricky Enger: That's fantastic. And I know sometimes it can be a challenge to find virtual gatherings if you're looking for a place to go and talk with people. In our show notes, we'll have links to places that you might go and search for local virtual gatherings as well as those that are international. That's kind of the beauty of it is that you can enjoy that drink and snack with people from all around the world.
Hannah Fairbairn: You certainly can. It's wonderful. That is a real advantage and you don't have to work out how you're going to get there.
Ricky Enger: Yes, no more stressing about transportation. I love that part. Also, in our show notes, we'll have a link to Hannah's fantastic book, When You Can't Believe Your Eyes: Vision Loss and Personal Recovery. And you can get that in a number of formats. You can check out the show notes there.
Hannah, I'm delighted that you could stop by and share both your own tips and tricks and I think we all learn a lot along the way and it's wonderful to be able to share those tips with each other.
Hannah Fairbairn: Yes, it certainly is. And if I were to leave listeners with one tip, it would be to overcome your reluctance and resistance as soon as you can by getting in touch with a support group or the agency in your area. Get to know a few other people who live with vision loss, or very many, because it can really be so much fun to be with a group of other people to share stories of what happened and suddenly you've got a group of people who live like you do and think like you do and it is transformative.
Ricky Enger: Yes. Thank you so much, again, for sharing your tips and your tricks and just your wisdom with us. It's much appreciated.
Hannah Fairbairn: Oh, well thank you. I'm delighted to be here and very, very happy holidays to everyone.
Ricky Enger: Got something to say? Share your thoughts about this episode of Hadley Presents or make suggestions for future episodes. We'd love to hear from you. Send us an email at podcast@hadley.edu. That's P-O-D-C-A-S-T @hadley.edu. Or leave us a message at 847-784-2870. Thanks for listening.
All Episodes
-
Episode 106
Prevent Blindness' patient advocacy program empowers people facing vision impairment. Patients learn how to promote change with their physicians, their families, drug companies, and even policy makers.
-
Episode 105
Ever thought about getting a guide dog? Listen in as we chat with members Jeff Flodin and Ed McDaniel about their experiences with guide dogs and some common misperceptions.
-
Episode 104
The National Library Service has a free talking book program for anyone in the US with vision loss. Tonia Bickford, an advisor from Michigan's talking books program, joins us to discuss how to get the most out of this free service.
-
Episode 103
This week we learn more about visual hallucinations that sometimes accompany vision loss, a condition called Charles Bonnet syndrome.
-
Episode 102
Sometimes vision loss can make us feel less secure. This week we talk about personal safety with Hadley's Chief Program Officer, Ed Haines.
-
Episode 101
For many living with vision loss, watching TV is less enjoyable as they can't see what's happening on the screen very well anymore.
Audio description fills the void by narrating key visual elements. Listen in as Ricky chats with Hadley member and avid audio description user, Judy Davis. -
Episode 100
Listen in to our conversation with Dr. Mondal, a low vision optometrist and professor at the University of Wisconsin. We chat about what to expect from a visit to a low vision specialist and the kind of help they can offer.
-
Episode 99
Have you listened to Hadley's community-generated audio podcast yet? In this episode, Ricky and Marc Arneson, Hadley's Director of Community, share a few stories from Insights & Sound Bites and discuss how to contribute your own story. Insights & Sound Bites | Hadley
-
Episode 98
Listen in as artist Chloe Duplessis explains how a degenerative eye disease changed, and didn't change, her life and love of art. "I thought art required sight. I was wrong."
-
Episode 97
Dr. Judy Box, a Hadley member living with macular degeneration, shares her tips for managing those important conversations with your eye doctor.
-
Episode 96
In this episode, the Hadley team talks all things gifts. Giving them, getting them, what's on their wish lists, and how vision loss may, or may not, impact these activities.
-
Episode 95
Friendships often change when one has vision loss. Whether it's adaptations to the activities you enjoy together, asking for help, or turning that help down … there are conversations to be had. Let's tune in as two Hadley members, Eugenia DeReu and Tara Perry, share their experiences with what's changed for them — and what's stayed the same.
-
Episode 94
Losing some vision can make for shopping challenges. Here are a few mishaps that Hadley members have run into. Have your own to share? Email us at podcast@HadleyHelps.org
-
Episode 93
This week we chat with the chief technology officer from Envision as he shares how their free mobile app or camera-enabled glasses can help those with vision loss. It speaks aloud written information, describes surroundings and objects, and even tells you who's nearby.
-
Episode 92
Lots of questions, concerns, and stereotypes connected to use of the white cane. In this episode, we address several of them from past discussions on the topic.
-
Episode 91
Listen in as Hadley's Director of Community, Marc Arneson, chats with Hadley members Bill Massey and Gregory Peterson about their participation in Hadley's new Peer-to-Peer program.
To learn if getting a peer connection is for you, call us at 1-800-323-4238. -
Episode 90
Listen in as we chat with Ed Haines about getting the most out of our magnifiers.
-
Episode 89
Listen in as we chat with animal lovers Debbie Worman and Sheri Robinson about the joys and challenges of caring for a pet when you have vision loss.
-
Episode 88
Listen in as Hadley member, Wendy Spencer Davis, shares why she decided to learn some braille and how it's helping her in everyday life.
-
Episode 87
Ed McDaniel, a psychologist with low vision, joins us to talk about common emotional triggers people with vision loss face and how to recognize and manage them.
-
Episode 86
Jessica Grogan from the American Diabetes Association joins us to talk about managing your blood sugar with vision loss.
-
Episode 85
Tune into our chat with Sarah Clark, a visually impaired marriage and family therapist, as she offers her unique insight into some common family dynamics that often make adjustment more challenging and how to navigate through them successfully.
-
Episode 84
Join us as we chat with Hadley member, Kris, about her experience living with vision loss in a senior community.
-
Episode 83
Listen in as Hadley staff share their real-life bloopers—times when things didn’t quite go as planned.
-
Episode 82
Join us as we take a dive into the features of the BlindShell cell phone.
-
Episode 81
Listen in as Pastor Scott Himel shares his advice for participating in religious services no matter your level of vision.
-
Episode 80
Join us to learn about how ScripTalk technology translates medication labels into speech and where you can find a participating pharmacy.
-
Episode 79
Join occupational therapist from Duke Eye Center, Fay Tripp, in a conversation about bioptic glasses—what they are and who can benefit from them.
-
Episode 78
Listen in as we chat with birding expert Freya McGregor who shares her tips on how you can enjoy this hobby, no matter your level of vision.
-
Episode 77
Listen in as Hadley's Doug Walker and Ricky Enger chat about how they use GPS in their daily lives. From walking directions to finding items or assisting a driver by navigating a trip, GPS can be a very handy tool.
-
Episode 76
Listen in as we chat with Dave Steele about his life, poetry, and vision loss.
-
Episode 75
Listen in as we discuss some common situations that can make us feel unsafe and share ideas on how to address them. We're joined today by Christy Ray and Ricky Jones of STRIVE4You.Org
-
Episode 74
Unfortunately, it's not uncommon for feelings of shame to creep in when we've lost some vision. Join social worker Jeff Flodin and psychologist Ed McDaniel, both visually impaired themselves, as they explore where these feelings come from and how they have worked through these emotions in their own lives.
-
Episode 73
Listen in as Dorrie Rush of OE Magazine shares how she resisted using a white cane for years, the stigma she feared, and the confidence and security she found once it was in her hand.
-
Episode 72
Learn how CVS pharmacy customers throughout the US can access a free service that reads aloud prescription medication information.
-
Episode 70
Join siblings Jack, Cathie, and Paula as they discuss the impact of their mother's vision loss on the family. Hear how they've come together as a team, learned how to find services, and continue to help their mom maintain her confidence and sense of well being.
-
Episode 68
We're joined by the creator of The Blind Life YouTube channel, Sam Seavey. Sam shares his personal journey with vision loss and advice he has for people who are newer to vision loss.
-
Episode 67
Whether you like to read for enjoyment or need to check your mail, reading is an essential part of your day. We're sharing tips and tricks for how to continue reading, the best low-tech and high-tech gadgets, and the benefits of learning braille.
-
Episode 69
Chief Innovation Officer Doug Walker chats with us about the launch of Hadley's newest podcast, Insights & Sound Bites. This new podcast will offer short stories shared by listeners. By tapping into the power of our community, we hope to share ideas, discoveries, and moments of inspiration along the journey through vision loss.
-
Episode 66
Jim Hoxie and Joanna Jones join us to discuss their children’s book, "Grandpa's White Cane." Jim shares how vision loss shaped his life and how he and Joanna, a retired teacher, began instructing children about the importance of white cane awareness and the do's and don'ts for helping people with visual impairment.
-
Episode 65
Blogger and social worker Jeff Flodin talks about his personal journey with vision loss and how his passion for helping people led him to blog about his experiences.
-
Episode 64
Hadley has partnered with the National Eye Institute (NEI) to offer a Spanish-language version of our popular cooking workshop series. Devina Fan, director of the National Eye Health Education Program at NEI, joins the podcast to talk more about this new initiative, NEI’s expanding Spanish content, and the importance of connecting Hispanic and Latino communities to important vision resources.
-
Episode 63
A change in your vision may make some parts of your job more challenging. But with a bit of help and some new skills, you may be able to stay in your job. Hadley Chief Program Officer Ed Haines and Learning Expert Steve Kelley join the podcast to talk about our new Working with Vision Loss workshops and to share tips for where to find support and how to ask for what you need.
-
Episode 62
Certified accessible travel advocate Melvin Reynolds joins the podcast to share tips for getting the most out of traveling, no matter your level of vision. Melvin gives advice on what to research ahead of a trip, considerations for traveling with a guide dog, and how a certified accessible travel advocate can help.
-
Episode 61
Karen and Dan Leonetti share how vision loss has changed their relationship and the advice they have for other couples.
-
Episode 60
Rabbi Lenny Sarko joins us to talk about how his vision loss journey led him to create a first-of-its-kind braille Sefer Torah that people around the country can access.
-
Episode 59
Actor and artist Bruce Horak talks about his personal journey with vision loss, how he got interested in painting, and his role in the new television series Star Trek: Strange New Worlds.
-
Episode 58
CEO of Eschenbach Optik of America Ken Bradley joins the podcast to discuss how Eschenbach has adapted through the pandemic to help people with visual impairment access low vision devices remotely. Through their "Telelowvision" program, you can try out magnification devices from the comfort of your home to find what works best for you before you buy.
-
Episode 57
Scottish radio broadcaster and podcaster Steven Scott loves finding and talking about tech stuff. He's especially fond of apps and gadgets that make life easier for him and others with vision loss.
-
Episode 56
NYT Columnist Frank Bruni returns to the podcast to talk about his new book. Frank describes his personal experiences with vision loss and how, with time, his perspective has grown.
-
Episode 55
IT professional and stand-up comedian Todd Blenkhorn talks about his personal journey with vision loss and how his passion for stand-up helped him find and share the humor in daily interactions.
-
Episode 54
In this episode, we're sharing highlights from previous interviews with a glaucoma specialist, retina specialist, and a low vision doctor. Listen in to learn more about common eye conditions, treatments, and what to expect at these specialist appointments.
-
Episode 53
Master Gardener Sue Brasel and Hadley's Chief Program Officer and gardener Ed Haines join us for a chat about gardening, no matter your level of vision or gardening experience. They share tips for how to get started, common challenges, and the many benefits of gardening.
-
Episode 52
We're joined by Carol Mackey, an avid discussion group participant, and co-host Debbie Worman to chat about what Hadley groups are, how to join, and what you can get out of them. With 10 groups on a variety of topics, there's something for everyone. Listen in or chime in – it’s up to you.
-
Episode 51
Bold Blind Beauty blogger Stephanae McCoy joins us for a chat on beauty, style and confidence. Stephanae talks about how vision loss shaped her life, and then shares some of her favorite fashion and beauty tips.
-
Episode 50
Hadley staff share their favorite kitchen gadgets and tips. Whether you're an experienced home chef or a total novice, you're bound to pick up a few ideas that fit your vision needs and make your time in the kitchen more productive (and fun).
-
Episode 49
We sat down with Kim Walker, co-director of research and development at Hadley, and Mark Andrews, one of the Hadley advisors who reviewed our exciting new approach for adults with vision loss to learn braille. From labeling items in your home to identifying buttons on an elevator, braille can be a wonderful tool for everyday use.
-
Episode 48
New York Times Best-Selling Author, Gretchen Rubin, chats about her research on how tapping into different senses can enrich our lives and connect us to each other in surprising ways.
-
Episode 47
Twin sisters Jenelle and Joy join the podcast to share their personal experiences with vision loss and adjusting to it emotionally. While they look identical, their perspectives and journeys differ, highlighting their mission to show that "there is no right way to go blind."
-
Episode 46
Hadley learner Sharon Noseworthy shares tips and tricks for hosting get-togethers of any type or size, no matter your vision. Sharon has always loved the role of hostess and has learned to adjust her approach now that her own vision has declined.
-
Episode 45
We're joined by Teepa Snow, occupational therapist and founder of Positive Approach to Care, to learn more about the challenges of having both vision loss and dementia. Teepa addresses common misconceptions about dementia and shares practical tips for supporting someone with both conditions.
-
Episode 44
We sat down with several Hadley staff members and asked them about their favorite tech tips, apps, and gadgets. Whether you consider yourself a tech expert or novice, the group recommends a variety of high-tech and low-tech options that fit your comfort level and interests.
-
Episode 43
Judge David Tatel has served on the second most powerful court in the country since 1994. He also happens to be blind. Judge Tatel joins us to share his story on building a law career and family while dealing with changing vision, the technology and resources he's found useful, and what made him consider getting a guide dog in recent years.
-
Episode 42
In honor of White Cane Safety Day today, we're joined by Hadley learner Larry Carlson and Orientation and Mobility Specialist Elijah Haines for a conversation about this important tool. Larry shares what made him decide to use a white cane, and Elijah shares tips for what to consider and how to adjust to using a white cane.
-
Episode 41
Supriya Raman, manager of the Disability and Multicultural branches of the TSA, shares tips on traveling among shifting COVID restrictions. Supriya covers what to expect at the airport and what resources are available for people with visual impairment.
-
Episode 40
Photographer Michael Nye chats with us about his latest art exhibit, "My Heart is Not Blind," a collection of photos and audio interviews of people with visual impairment. Through these stories, Michael provides a look into what he calls "our shared humanity and shared fragility," as well as common misunderstandings about blindness.
-
Episode 39
Champion blind golfer Chad NeSmith talks about how vision loss shaped his life, and how he shares his passion for golf with others with vision loss.
-
Episode 38
Doug Walker, Hadley co-director of R&D, and Ed Haines, Hadley Chief Program Officer, chat about the making of Hadley's "Adjusting to Vision Loss" workshop series. The series guides people through the emotional aspects of vision loss. Doug serves as the series' personal storyteller and narrator.
-
Episode 37
In this episode we chat with ophthalmologist Dr. Angela Elam from the University of Michigan. Dr. Elam addresses common questions and concerns, and shares her advice for returning to the eye doctor among shifting COVID restrictions.
-
Episode 36
Dorrie Rush, OE's Chief Content Officer, joins us for a chat about this wonderful online resource chock full of tips for living well with vision loss. You'll find great articles on using tech tools, tips for health and well-being, stories from others living with vision loss, a terrific podcast, and more.
-
Episode 35
Learn about a new service that’s just launched in 2020 called Accessible Pharmacy. Accessible packaging and labeling and personalized customer support all free of charge to the end consumer, and specifically designed for those with vision impairment.
-
Episode 34
Audio Describe the World! That’s the mantra of UniDescription: a free smartphone app that provides audio descriptions and navigation tips for US National Parks and other public places.
-
Episode 33
In this episode, we chat with low vision optometrist Dr. Mark Wilkinson from the University of Iowa. Dr. Wilkinson answers common questions and shares his advice for getting the most out of low vision optometry appointments.
-
Episode 32
Jan and Elgie Dow share how vision loss has changed their relationship and the advice they have for other couples.
-
Episode 31
Join Hadley advisor Eddie Becerra as he shares about losing his sight from diabetic retinopathy, and how he gained a new perspective on life.
-
Episode 30
Classically trained chef Regina Mitchell shares how vision loss shaped her life. Regina worked her way back into the kitchen and is now helping others cook with confidence, no matter their vision.
-
Episode 29
In this episode we sit down with the director of Well Connected, an organization that offers free, call-in groups for adults over 60 on a wide variety of interest areas: games, music, meditation and more.
-
Episode 28
Support groups can be a great way to connect with others who "get it." Listen in as as low vision support group leaders Lynndah Lahey and Judy Davis describe how their groups are run and what their members get out of them.
-
Episode 27
World-renowned artist John Bramblitt describes how vision loss has shaped his painting and his life.
-
Episode 26
In this episode, we chat with Dr. Tim Murray of the American Society of Retina Specialists. Dr. Murray treats eye diseases such as macular degeneration and diabetic retinopathy. He answers common questions and shares his insights into the future of treatments.
-
Episode 25
In this episode, we sit down with Dr. Jullia Rosdahl, a glaucoma specialist from the Duke Eye Center, and ask her some of the many questions we’ve heard about glaucoma, its risk factors, and how to treat the disease.
-
Episode 24
Hadley learning expert Jessica Smith shares her experience raising a puppy that may eventually become a guide dog. She covers what she’s learned and things to consider if you’d like to volunteer to help out a guide dog school.
-
Episode 23
October 15 is White Cane Safety Day, a day to recognize this important tool that empowers people with visual impairment to travel safely and independently. It also brings attention to the general public to be mindful of visually impaired neighbors, giving them additional consideration and right-of-way when needed. We sat down with Kellee Sanchez, an orientation and mobility specialist, to talk about the history of White Cane Safety Day, and how a white cane can help those with vision loss.
-
Episode 22
Be My Eyes is a free smartphone app that connects visually impaired users with sighted volunteers for help with visual tasks. We sat down with Will Butler from Be My Eyes to hear how the app started, tips for using it, and exciting new features that provide specialized assistance, including with Hadley.
-
Episode 21
Tracy Simon from Eye2Eye peer support program shares her story of vision loss, how her program works, and the benefits of connecting with and supporting each other.
-
Episode 20
Ophthalmologist Dr. Lori Provencher chats with us about how the coronavirus pandemic has changed doctor's visits. She shares tips for staying safe, questions to ask, and what to expect before, during and after your next office visit.
-
Episode 19
Mindfulness expert Tiffany Guske returns to the podcast to share tips and insights on how to cope with life's challenges, such as vision loss or an illness, building resilience and focusing on self-compassion instead of judgment.
-
Episode 18
Author of "When You Can't Believe Your Eyes," Hannah Fairbairn, chats with us about how to communicate in everyday situations when you can't rely on visual cues. Hear Hannah's own story about losing vision, her practical tips on adjusting to vision loss, and advice she has on regaining confidence in social situations.
-
Episode 17
In this episode, we continue the conversation on living during the COVID-19 pandemic with a visual impairment. Listen in as we share some experiences, tips, and strategies for coping during these difficult times.
-
Episode 16
The COVID-19 crisis has brought a wave of change and uncertainty to our everyday lives. Listen in as we share personal experiences, resources and some helpful tips...all from a blind or low vision perspective.
-
Episode 15
Assistive technology experts Ricky Enger and Steve Kelley review BlindShell, a mobile phone built for those with visual impairment. They discuss the basic features, how it differs from a traditional smartphone, and how to decide if it's right for you.
-
Episode 14
This week we sit down with Dan Roberts, author of "The First Year-Age-Related Macular Degeneration: An Essential Guide for the Newly Diagnosed" and founder of MDSupport website and support group. Hear Dan's own story about being diagnosed with macular degeneration and what prompted him to reach out to others facing similar circumstances.
-
Episode 13
Listen in as we explore the basics of using hand tools with a visual impairment. Gil Johnson, a visually impaired home repair expert, shares tips on everything from measuring, to leveling to hammering.
-
Episode 11
Elections are right around the corner. So we gathered a panel to talk about options for voting no matter your level of vision. Listen in as we explore everything you need to know, from registering to vote to the many ways you can cast your ballot.
-
Episode 12
Ricky sits down with Android Accessibility Product Manager Brian Kemler to discuss what is available on Android phones for those with visual impairment. From adjusting font size and color, or opting to listen with TalkBack instead, the commitment to making these powerful tools more useful to a wider audience is clear.
-
Episode 1
In this episode, we chat with Gil Johnson, an experienced home repair and woodworking enthusiast about things to consider when undertaking home repair with blindness or low vision.
-
Episode 2
Hadley's Debbie Good sits down to continue a conversation with author and visually impaired world traveler Dr. Wendy David. Together they explore a wide variety of helpful hints covering train, plane, and cruise travel as well as practical information on traveling internationally and navigating hotels.
-
Episode 3
In this episode, Ricky Enger chats with Joe Strechay, associate producer on the Apple TV+ series SEE. The show takes place in a future where, after a viral apocalypse, all humans are blind. Joe takes us behind the scenes of the show and his work to help build an inclusive set for the cast and crew, including those with low to no vision. From casting to costumes, scripting to scenery, hear how Joe helped create a science fiction world that strives to be authentic to life with vision loss.
-
Episode 4
Hadley's Debbie Good sits down with travel author Dr. Wendy David in this latest episode. In part one of this two-part interview, Debbie and Wendy discuss tips for traveling with confidence as a blind or low vision person, advice on picking destinations, considerations for traveling alone and in a group, and more!
-
Episode 5
Ricky Enger is joined by Hadley's Debbie Worman and mindfulness expert Tiffany Guske in this latest episode. Debbie and Tiffany talk about what mindfulness is and the specific benefits that mindfulness can offer for those living with vision loss. Tiffany then walks listeners through a short mindfulness exercise.
-
Episode 6
In this episode, Ricky Enger speaks with New York Times columnist Frank Bruni, who shares the story of his sudden vision loss from NAION. Bruni speaks candidly on his adjustment to the change, maintaining a realistic attitude towards his vision loss, and the failure of medical professionals to provide resources after diagnosis.
-
Episode 7
Listen in as we share practical tips on how to keep your handwriting readable. This resource-packed episode includes many useful techniques and solutions to common handwriting challenges. Hadley Learning Expert Jennifer Ottowitz chats with Sue Dalton, Certified Vision Rehabilitation Therapist.
-
Episode 8
In this episode, Hadley's Steve Kelley speaks with Kendra Farrow, from the National Research and Training Center on Blindness and Low Vision, located at Mississippi State. The episode serves as a guide for those new to vision rehabilitation, including determining who is eligible for services, key differences between the medical and social services models, and how to locate services in each state.
-
Episode 9
In this episode, Ricky Enger chats with Microsoft's Jeremy Curry, a Senior Program Manager with the Windows Accessibility team. New vision accessibility features are now available in Windows 10 for low vision and screen reader users.
-
Episode 10
In the inaugural episode of Hadley Presents, Ricky Enger and Jonathan Mosen of Aira chat about the ways in which a visual interpreter service, such as Aira, can be used to gain valuable visual information and enhance travel and leisure activities for blind and low vision users.