Beginning Your Search

For our first roundtable discussion, we shared our reasons for joining the group and what we hope to gain from connecting and sharing with others. We then discussed how to be a self-advocate, how to build resilience, and how to set goals even when we don't know where to turn next.

July 17, 2019

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Audio Transcript



Hadley

Resource Roundtable – Beginning Your Search

Presented by Debbie Worman and Steve Kelley

July 17, 2019

Debbie W.: Welcome to Hadley's newest discussion group, the Resource Roundtable. And my name is Debbie Worman. My last name is W-O-R-M-A-N. And my co-host tonight is Steve Kelley. And we're excited to be here with you.

We're eager to see where this group takes all of us, and we look forward to learning about those resources that have assisted and supported you.

Let me first tell you a little bit about myself. I'm a member here at Hadley. I'm a learning expert on the AIR team. A-I-R. And that doesn't mean we're all airheads, so don't take it that way. AIR stands for Adjustment, Independence, and Recreation. So that's what our team is all about here at Hadley. And I've been an instructor with Hadley for many years. I won't tell you how many. That will date me. I'm sure I've worked with many of you in some of Hadley's courses in the past. And I'm currently busy with co-hosting discussion groups as well as doing this discussion group. I also do the Writer's Circle, where we talk about all things writing.

And you can reach me, feel free to reach me, use my last name, because there's three Debbie's at Hadley. So if you use Debbie, who knows where that ends up? But use my last name, W-O-R-M-A-N at Hadley dot E-D-U, or you can call me via the toll free number. My extension is 6685.

Steve you want to introduce yourself?

Steve K.: Yeah, thanks so much, Debbie. I'm Steve Kelley, and that's an E-Y, you know, just to be official. And I'm a newcomer at Hadley, although I've been a vision rehabilitation therapist for the last 12 years. And I too have got another discussion group that I'm doing with Elise Heinrich, called Get Up and Go, and we meet the third Thursday of each month at 2:30 central time, and that's all about recreation, that's a lot of fun.

My email address is Steven, S-T-E-V-E-N K at Hadley dot E-D-U, and my phone extension is 2831, and I would welcome anybody who's got questions that are covered, or has a tip that they want to share, just to email or leave a voicemail message. Thanks, Debbie.

Debbie W.: Okay, well great. So, why resource Roundtable? Why did we think, why do you think Steve and I decided to start this group? So I would like to share personally that I feel very connected to this topic, I kind of feel at the hip, I'm joined at the hip with it. Helping people locate resources has always been near and dear to me. For several years at Hadley, I was actually the official information and referral specialist, how's that for a title? I enjoy going on the hunt with students to locate resources, if they emailed me or called me, and often my colleagues at Hadley would often say, "If Debbie can't find it, no one can."

So I sometimes felt like a bloodhound, you know? Sniffing around on the hunt. I know the challenges that one can encounter while searching out resources, and I know the absolute joy and excitement when we connect with a reliable contact, and a wealth of information to support us. It's absolutely an amazing feeling, when you find that connection.

And I wanted to be a part of Resource Roundtable to not only share what I know about locating resources, but also to learn from you all, the participants. You all have wonderful resources that you can share with Steve and myself, and with the other participants. Steve and I are not the official experts here, we're just guiding the communication and the process.

And this I feel was a wonderful time to join forces with one of Hadley's new employees, Steve Kelley, it gives me a chance to get to know him and work with him. So Steve, you want to tell people why you're participating in this particular discussion group?

Steve K.: Sure, thanks Debbie. As a vision rehab therapist, I mean, it was often the case that I would meet someone who sometimes really had a very difficult time trying to find services. Often times, if you've got an eye disease, or some sort of a sudden loss of vision, the eye doctors sometimes are not really forthcoming on other services, or that you can find in the community, so you know, it was the case that a lot of times, people just really didn't have any place to turn, and often times, just kind of stumbled across the agency or the division for the blind in my state of Maine.

So that's one of the reasons that I really wanted to join, and to be honest, you know, one of my own stories, which I'm not going to share a great deal about, was very similar to this, it took me an awful long time to realize, or find, that there were services related to vision loss that were outside the doctor's office, and that there were support groups, and people who met. And I realized how difficult that can be, looking around and not knowing, so that was one of the reasons that I really thought it'd be fun to be a part of this, and feel good to be able to share that, and provide a forum for other people to share that kind of information with other folks.

Debbie W.: Thanks, Steve, that was interesting to me. I don't know if you and I talked about that before, so it's interesting for me to hear why you're joining the discussion group, it's good to have you on the team at Hadley and to be a part of all this. I'm sure people will appreciate what you bring to the show here.

What I want to say about Resource Roundtable is Steve and I are not here to give you phone numbers and websites per se. We're just not going to be getting on and saying try this, try that, call this, click on that, here, here's a list of 10 resources to try. We don't want to make it about just giving you places to check out. We want this group to be a little bit more than that. Not to say we're not going to share that information, absolutely we will, but that's not what this group is all about. In the course of our time together, I hope we'll explore such things as how do you enhance your self-advocacy skills to find and use resources? For example, how do you become a good self-advocate when you make those phone calls? That you're able to ask for what you need, and seek out what you need? That's a vital part of looking for resources. Perhaps we'll discover how to store information, how to keep track of all that. I might need some tips on that, I have notes all over my desk, so I probably need to get more organized.

And we also want to talk about how you can start utilizing other people to help you. You know, don't ever feel like you're in this alone, are there family members, or friends, that help you make some phone calls? And other groups that you can join, some blindness consumer groups, and talking to other people to assist you in your searches. You know, it doesn't have to be we have to do all of this by ourselves.

And we're sure that topics will carry over from month to month. We are meeting once a month, this group meets once a month. And so topics may carry over. We may not, you know, always finalize what we talked about each month. And we may find that we go - Steve and I have talked about this- We may go in areas we never imagined, so we're open to what you will bring to the group, each one of you, what you will bring to the group. We encourage participation if you feel comfortable sharing. And we also, you know, if you just want to lurk from time to time, if you're one of those shy people that doesn't want to raise your hand, we understand that, too.

But we're not here, Steve and I aren't here to provide that one perfect resource, but we're here to help you explore how to find a variety of resources, so that you can do the homework, and we're ready to start the conversation. Steve, you have anything to add to that?

Steve K.: Yeah, I also just wanted to mention, too, that even though we're liable to mentioning other websites or products during the discussion group, this is not about endorsing that product, one thing over another, we're just suggesting a resource. And you know, just to follow up on what Debbie is saying, we're all so different, our goals are all so different that it would be silly for us to just shout out a resource here and there, and I think it's a far more instructive, or helpful, to figure out, you know, how to ask those questions, and be persistent yourself, so some of this will be all about that.

Debbie W.: Great, great. And Steve jumped in, and you're going to hear this a lot from both of us, and I'll just repeat that, because it bears repeating, the disclaimer. Hadley does not endorse one resource, or one organization, over another. So we're providing you information, but we're not endorsing one resource over another.

And excuse me, I just had to get my cat off the computer, so these are fun things that happen. So, that's the disclaimer that you'll hear from us frequently throughout our discussions. It's up to you to decide who you're going to call, and what you're going to seek, and one resource may work for Judy, one may work for Barb, one may work for Gloria, everything's unique, so different strokes for different folks, right?

So I thought it would be interesting to begin by talking about just what the heck is a resource? What do we mean when we say resource? And I went to my trusty online dictionary and discovered that a resource, excuse me, is a stock or supply of money. Well, that doesn't apply here, we're not giving out money. But, it's also... but it is material and assets that can be drawn on by a person or organization, in order to function effectively. So think of that, we're all looking for resources to help us function more effectively. So it can be a thing. It can be a thing, such as an organization, or website, or a product. But you can also think of it as this, it can be an action, or a strategy, which you can adopt in circumstances. So it can be your strategy. A resource can be your strategy.

We can tap into our resourcefulness, and we can find our inner resources, our strengths. So sometimes we can find out what works for us and share that with other people. You can kind of tell that I'm an English teacher, because I'm giving you nouns and pronouns and adverbs and such.

So, the idea of the roundtable came from the idea that we're all gathered here to just be informal. You'll find that Steve and I have unique sense of humors that will come out in our discussion. And sometimes we fall over our own words, and everything's not scripted, so we try and just to be informal in our discussion. We really want this to be a round table, a round table was started in the time of Merlin and King Arthur. Where King Arthur decided that he wanted his knights to all be equal, right? The table was circular, there was no head of the table. Everybody could participate. And that's what we encourage from you. We encourage everybody to participate. Look to Steve and me as equal knights at the Roundtable, we're basically here to facilitate the conversation, but we don't consider ourselves the prime experts on any topic. Right, Steve?

Steve K.: Oh, absolutely.

Debbie W.: Okay. What I'd like to do now is open the floor to hands up, and just hear from people, I'm curious to hear from people why they came to Resource Roundtable, and what you hope to gain by joining our discussion group.

Okay. Who's going to be our first brave soul to share tonight? Okay, I have the number ending in six three two. Six three two, I'm lowering your hand, and unmuting you.

Adrian: My name is Adrian. How are you?

Debbie W.: I'm doing fine, what brought you to the Resource Roundtable, Adrian?

Adrian: Well, I've been visually impaired about six years now. I did attend our local Tampa Lighthouse to learn how to be a visually impaired person. And the process, it was wonderful, you know, that I was able to go from being quote unquote normal, to now in this area of being visually impaired. And the things that I've learned over time, but, I'm kind of at a, I guess, standstill area, because I do want to learn more. I do want to seek out other resources. For instance, I possibly want to obtain employment again, and one of the things I find is that ... and it's something that they did here, even. They lowered the expectation, and were pushing toward being a greeter at Publix, when I'm a degreed person. So that's one of the big things. What kind of resources can we tap into as visually impaired blind people, with degrees, and you know had all kinds of experience prior to becoming visually impaired?

Debbie W.: Adrian, thank you so much for sharing that. I think you raise a very good topic, resources for employment. So thank you for bringing that to the table. I want to applaud you, because you so clearly illustrated one of the key components of being a good self-advocate. Can you guess what that was, Adrian?

Adrian: Yes. You know, just not falling into, or accepting, a lower area of employment, just because that was on their programming. That's not something that's realistic for me, even though I am visually impaired, the eyes are one thing, but my mind is something totally different. So give me what I need, you know? To be a functioning person, although I am visually impaired.

Debbie W.: Right, right. So you have a new normal. It's not that things aren't normal anymore, you just have a new normal, that's what I say.

Adrian: Correct.

Debbie W.: And so you're not letting those words visually impaired define who Adrian is, and that's a very strong, confident person who can voice that, and say I'm not going to let those words define me. It's part of who I am, but it's not exactly all of me. So I applaud you for that. I also want to point out that Adrian is doing something, or modeling, also, something for us, that's important as a self-advocate, and that is setting goals.

So when we begin our search for resources, whatever they may be, independent living, maybe we want to find books on tape, or a way to read, whatever, it is to set goals, you know? Sometimes just sitting back and saying ... one of the things Adrian said is, "I may not know where to start, I'm through with some services, and now I'm at a standstill."

So she's saying I don't want to be at a standstill, I have defined what I want to look for. I want to look for resources concerning employment. So kudos to you, Adrian, for doing that. I applaud you. And Steve, anytime I'm talking, just always feel free to jump in with any comments. I can be a really talkative person, so people have to kind of shut me up sometimes. Fair is fair, right?

Does anybody else want to share? Does anybody else want to share why they came to Resource Roundtable? We're curious to hear why people came. Okay, Gloria, your hand is up. I'm going to unmute you. Gloria?

Gloria: Hi. This is Gloria.

Debbie W.: Hi Gloria.

Steve K.: Hi Gloria.

Gloria: Hi. Well, I was diagnosed with normal tension glaucoma over 20 years ago. And when I was diagnosed, I immediately realized that my vision was never going to be stable and I was going to lose my sight. And I, even then, when I still had very good vision, started looking for help and resources, and organizations, and you know, just information. Information, because I am an information gatherer. So I've been doing that for 20 years, and you know, the more that my vision changes, the more I need to change what I do, and how I do it.

So, you know, in recent years, my life has changed dramatically, with the death of my husband, my moving from the state we lived in back home to my old state, and so on. So, I again, in this, continue to look for what I need, and what fulfills my need. In doing that, you know, I have joined the NSB, I am here in the Cleveland area, where we have the Cleveland Sight Center, I am a client there. And I had known about Hadley for a while, and several years ago used to go online and watch the videos.

Now, you know, life got busy and changed. And while it changed, one of the things that I found was that while I am looking for resources, I am meeting more and more people who are also doing the same thing and looking for more resources. We, when I say we, my colleague and I, we met at a discussion group, discovered that our senior centers no longer had the support for low vision support groups. We got the idea of actually creating presentations for the low vision groups that were no longer getting the support from our local center. And so that's one of the things that we're doing. And in doing that, we actually had to create a resource list. So, while we were doing that, and as we were talking about creating more presentations, I decided that it's time for me to go back to Hadley, and learn from Hadley, and get information, because I'm still information gathering. I will never stop doing that.

Debbie W.: Well, I love that title you give yourself, information gatherer. I picture you in the field gathering information and putting it in your bushel basket, that's how I picture you.

Gloria: Oh, that's lovely, that's lovely. Yes, had my life gone differently, I think I would've been a researcher, because that's what I really just love to do, is find information, get information.

Debbie W.: So I got a feeling, Gloria, that everybody will be picking your information bushel basket as we continue our discussion. So thanks for joining us, we appreciate that. We appreciate you being here.

One of the things that Gloria mentioned, that I think's important to reiterate is that often our life changes. We may think we have the resources we need, and then boom, Gloria shared personally that her husband passed away, so at that point in her life, maybe she needed different resources. Maybe she wanted to find a support group to help her for grieving for her husband. Life changes, so sometimes a resource has to change too. Something that worked for us in the past may have to change.

We move. Oh my gosh, isn't that one of the hardest things to do? To just pick up and move, and find new resources? And I admire you, Gloria, for creating things. Being creative. If something doesn't exist, don't let that stop you. Maybe you'll create some, maybe if there's not a resource in your area, maybe you have to be the one that starts a support group, or a directory of services. So, don't, you know, if something doesn't exist, be like Gloria, and be creative.

Steve K.: I love the fact that she, because something stopped, she picked up the pieces, and got it started again.

Debbie W.: Yeah, I think ... I always go back to, I don't know, resilience, that's my topic of the year. Being resilient means you bounce back, you know? Life throws us things, you know, we're going along a certain path, and then life throws us a challenge, things don't go as expected. But we have to be ... I don't know people's ages here, but I can date myself, I was a child of the '60s, we used to have these toys called Weebles. And the Weebles wobble, but they don't fall down. And that's what a resilient person is. You weeble, and you wobble, but you're resilient and you bounce back. So that's often what has to happen when you're looking for resources. And to find resources that help you do that.

Does anybody else want to share why they came to Resource Roundtable tonight? Raise your hand and I'll call on you. Okay. I have somebody that's identified just by iPhone, so I hope you know who you are, iPhone. I know your name's not iPhone, but that's how you're identified. I will unmute you.

Tonni: Hi, my name's Tonni.

Debbie W.: Tonni? Okay, hi Tonni.

Tonni: Hi. Yeah, I joined the discussion today because I relate to what everyone's saying here and trying to build resilience. It's like we ... I have been blind for about 17 years now, and you know, got started with department of rehab, and they were able to help me through school, and I got a part time job, but then the technology changed, and the job wasn't relevant anymore. And then so I was searching around, I was like, "You know, I really enjoy pottery," and I started getting into pottery, and I had the web development skills, and started making my own website. Then it's like, okay, I need a little help in this area, but now I don't know where to get help for this.

So my goal has been to use the web development skills and small business skills that I've started, and trying to make a website, like gathering information and listing the resources, because it's ... I mean, most of the time, it's wasted just trying to pursue different avenues of finding information. And I think just, you know ... and then I've had friends too that just lost their vision, and they don't know what to do, they don't know where to go, and it just, it made me realize like, if I could share the things that I've learned so far, and then help connect with other people-

Debbie W.: That's great, that's wonderful Tonni. I think what happens is, don't your friends tend to listen to you more than somebody that they might call up? Somebody who's been through the experience?

Tonni: Mm-hmm (affirmative).

Debbie W.: I think that's sometime so true; we tend to listen more to somebody who's been through the experience. So you are a valuable resource to your friends who are experiencing similar situations, right?

Tonni: Yeah, mm-hmm (affirmative).

Debbie W.: Right.

Tonni: Yeah, that is helpful.

Steve K.: I'm also hearing an awful lot of flexibility in what Tonni was describing. It sounds like you kind of move as things move around you. You're not staying in one place and sounds like you're willing to change.

Tonni: Yeah, that's what I... when you're talking about resilience, I'm like, that's the perfect word for what we have to be as blind, because so often I feel like things are going along and you just hit a brick wall, and like you were just saying, do you stay down, or you try to find something else and try to find help?

Debbie W.: Yeah. Well, you're a good role model for your friends, I'm sure they appreciate you.

Tonni: Thank you.

Debbie W.: You also mention the fact that you acknowledge that you needed support, that you needed to reach out. And often time, sometimes we find that's the hardest thing to do. And I'll share with you personally, I'm a cancer ... was dealing with a cancer diagnosis, and I'm a very independent person, and for me to stop and reach out for help was hard, but when you get to some points in your life, again, when life changes, and you get knocked down, and we have to bounce back up, we have to acknowledge, you know. We can't sit in our rocking chairs at home, or our recliners, and expect somebody to knock on the door with the answers. We have to be active in pursuing resources.

Again, you will hear Steve and I talk about self-advocacy, and that's an important piece of searching out resources. And again, you know, it may be some heavy-duty resources, or it may just simply be looking for a book to read. How am I going to read a book? All my friends are reading a certain book, and I'd like to read it too, what's accessible for me?

I have a phone number, six one six. I will unmute you, and you can say your peace. Six one six.

Kayla: Hi, my name is Kayla, and I really think it's cool that you're talking about resilience and everything. There's a lot of good TED Talks on that as well, just putting that out there. I feel like once my vision has decreased throughout my life, and I still have a tiny bit, but every time I feel like I get comfortable, I lose more. I'm like, "Okay, I finally got the new... okay, everything changed again."

But I've tapped my local resources prior, so now they're like no, we've already helped you, you can't get additional help anymore. So I feel like I'm kind of in limbo, where there's not help left to get. Even though help is still needed. Does that make sense?

Debbie W.: That makes perfect sense. It's like you find a resource, and then that resource doesn't come through for you, for whatever reason.

Kayla: Yeah.

Debbie W.: It doesn't have quite what you need, or because of their restraints, maybe-

Kayla: Yeah, they're only allowed to help someone once, rather, you know, even though my vision was cut in half again, that they can't do anything.

And then I also volunteer at the Arizona Center for the Blind and Visually Impaired. And like Gloria, I am an information junkie, or gatherer-

Debbie W.: Okay.

Kayla: -the two. So I was excited when I saw this on the email list, because I know that me personally, I can use it, but I know also I have a handful of people who ask me questions all the time about resources. So I'm hoping that I can learn enough and help them get the resources they need as well.

Debbie W.: Thank you Kayla, and I like the theme we have going. Not only are we trying to find resources for ourselves, but we're going to share them, right? I think that's a wonderful gift we can give other people. Thank you, Kayla, for joining us.

Kayla: Thank.

Debbie W.: Okay, I have Carmen. Carmen's hand is up, I will unmute you. Carmen?

Carmen: Yes. I am not visually impaired, I am an occupational therapist, with a low vision specialty, and now I'm studying to be an O&M instructor, and when I saw this, the email come up, and I just, I don't think I can have enough resources in my toolbox to share with people, and that was my reason to come to this meeting today.

Debbie W.: Okay, well great, we're glad you're here, right? I like the ... talking about tools in your toolkit. We can never have enough tools. And like Kayla said, sometimes those tools get rusty, and don't work for us, and we have to find others, right?

Debbie W.: Okay, this might be a good time, Steve, I know you-

Carmen: And now, you know, with ...

Debbie W.: Go ahead, Carmen.

Carmen: Well, I would just say that now with technology, things change from one month to the next, so we have to be ... keep ourselves updated.

Debbie W.: Right.

Steve K.: Because the toolkit doesn't work anymore, there's a new gadget.

Carmen: Yes. Yes.

Debbie W.: Well, Steve, this might be a good time for you to jump in, because we're getting close to ... I can't believe we're getting kind of close to winding down. If you can share a few of the resources that you recommend for people starting out, that we had put on our beginner's resource list. If you can share those for people.

Steve K.: Yeah, one of the resources that I like a lot is vision aware dot O-R-G. And they have a directory of services, so if you go to vision aware. And that's V-I-S-I-O-N-A-W-A-R-E dot O-R-G, slash directory. And just so everybody knows, we're going to be putting these in the show notes, so don't panic. They'll be there, and you can check on them in a week. But, there's a directory of services, and the great thing about that is, you can specifically look up services, or you can look up the state that you live in, and see what services are there. So for example, if you are in, I'm just going to pick Arizona, because I heard it, and you need resources on technology, you might find a subheading there for technology. So you know, it's a great place to get started.

The other place that I really like is the connect center, and that's the American Printing House for the Blind. And there's an 800 number, it's 800-232-5463, and they have, someone answers the phone there during business hours, and after business hours, of course you can leave a voicemail. But the connect center is just kind of a generic place where you can ask a question like where might I find a certain resource? Is there anything more, say in New York, that I'm overlooking? Where can I find a little bit of extra help? So that's a great, general services number. And should we give out the Hadley number again, Debbie?

Debbie W.: Yeah, I think so, I think we can toot our own horn, right?

Steve K.: Sure.

Debbie W.: Hadley as a resource.

Steve K.: Yeah, another sort of general place to ask a question, or to refine your search a little bit, is just to call the 800 number at Hadley, and that's 800-323-4238. And you'll get a human being during business hours, and they may be able to help brainstorm. What was that title that you had, Debbie?

Debbie W.: Information and referral specialist.

Steve K.: Exactly. So you can stumble across and information and referral specialist there who might help you refine that a little bit.

So those are just a couple that I can think of off the top of my head that are really helpful places to start.

Debbie W.: Thanks Steve, I appreciate that.

Steve K.: Sure.

Debbie W.: And people can always go, don't worry about jotting down numbers and email addresses as you're listening, because the recording of this discussion group will be up on our Hadley website within three days. Or a week. Three days to a week, let me be safe here. And then you can always go to the show notes, and show notes is just a fancy name for resources. And you can find all those websites and toll-free numbers and phone numbers under the show notes.

One resource that I'd like to share is- somebody had shared this on the Hadley Facebook page, and I thought it was worth, you know, people might want to check it out. It's called vision loss resources dot word, W-O-R-D, press dot com. (visionlossresources.wordpress.com). And it had a lot of links to organizations, info about eye conditions, and state by state resources, sports and recreation, and something I found interesting, films that had either visually impaired characters in them, so that was really interesting.

Another resource to consider to support our Resource Roundtable here, is Steve's very own podcast that you can find on Hadley's website, under our Hadley Presents. Those are our podcasts. And Steve recently did one called A Guide to Vision Rehab. And you may want to check that out. So it was really done well, so good job Steve. Do you want to say anything more about that podcast?

Steve K.: Yeah, thank you. It was a great opportunity, because it's kind of one of those little soapbox issues that I have. So many people walk out of the doctor's office, and let's face it, you know, if something like this, if you get a diagnosis of a vision loss, sometimes you're not really paying attention, but the bottom line is, you walk out, the doctor, perhaps, says there's nothing more that he or she can do for you, and you're kind of left hanging.

So I was able to sit down with Kendra Farrow, from Mississippi State, and she too is a vision rehab therapist. And we talked about this. Where does a person start? How do you get rolling with this? How do you keep your spirits intact as you're doing it? So it was a great opportunity. If you're in that situation, or you know somebody, I'd highly recommend just giving a listen.

Debbie W.: Thank you Steve.

Steve K.: Yeah.

Debbie W.: One of the things that I like to mention is somebody had already emailed me this afternoon and was asking for resources. So he, from the name I couldn't tell if it was a he or a she, but they were asking about any accessible iOS game. So does anybody out there have any accessible iOS games, that this person could play? I think he wants to play them on his iPhone or iPad. Anybody got any good games? And if you can't think of any this week, maybe bring them next week.

Okay, I have a hand up, four nine three. I'm going to unmute you. Four nine three.

Leanne: My name is Leanne, and there's another discussion group, I think it's under the tech-y groups, and there was one on games, and there might be one on the games section of that discussion group.

Debbie W.: Wonderful, wonderful, great minds think alike. I had emailed him that link. So, it's good to know that great minds think alike. So you've been joining the Tech It Out discussion group?

Leanne: I just went that one time.

Debbie W.: Okay, okay.

Leanne: I'm just new to all these groups and everything, so I'm trying to figure out when they meet and yeah, what happens in them. But that was very, it was very helpful.

Debbie W.: Okay, great.

Leanne: And I'm here because I want information, and I've had a hard time finding information. And the other reason is for connection with other people that are blind, because it helps to know that I'm not alone. So thank you for doing this.

Debbie W.: You're welcome, you're welcome. And you bring up a really good point. We want to encourage people to explore the other discussion groups. You know, find a group, you know maybe the topic isn't everything you want to know about, but it's a good way to connect with other people and learn about different things out there.

Barb, your hand is up, I will unmute you.

Barb: Yes, on the games. There is an app called Blindfold. Which has a number of games for blind people, and I believe you can use it on the iPhone and also on the Android.

Debbie W.: Okay. It's called Blindfold, F-O-L-D, Blindfold?

Barb: Yes ma'am.

Debbie W.: Okay. Sounds-

Barb: Blindfold.

Debbie W.: Sounds interesting. Okay, thank you Barb.

Barb: You're welcome.

Debbie W.: Okay, so we're kind of winding down our time now. So I want to encourage anybody who has any specific questions or comments to raise your hand. Again, everybody is encouraged between our monthly meetings, to email or call Steve and myself. So, feel free to do that. Again, my last name is W-O-R-M-A-N, Worman at Hadley dot E-D-U.

And Steve is, Steve what's your email address?

Steve K.: It's Steven K, S-T-E-V-E-N-K at Hadley dot E-D-U.

Debbie W.: Okay, great. Here's Gloria, okay, Gloria, I'm going to unmute you.

Gloria: Oh hi there. Actually, I have just changed from an Android to an iPhone. Now, I have gone to YouTube, I have also gone to some other people that I know that are more proficient in the use of iPhone, and I have seen a couple of the Hadley videos. But, where else, and how else, can I get up to speed on using this phone and its accessibility features? It has been quite a challenge.

Debbie W.: I was going to suggest the Hadley YouTube videos. I think Douglas Walker, who does those, provides some really good instructions. And if there's topics not addressed there, email Steve myself, when we can forward those on to Douglas.

Gloria: That would be great, because I've got the iPhone 10R. It does not have a home button, so it works just a little bit differently than some of the videos I've seen.

Debbie W.: Okay.

Gloria: And that can be, yeah, even more challenging.

Debbie W.: Okay.

Gloria: Yeah, always have to learn new things as our vision, you know, as the vision change progresses. Always something new. And I am older, and I am retired. I tell people I have more gray hair than brain cells. I'm stretching all these brain cells with the new iPhone. I'm currently learning braille, and you know, trying to be as independent as I can.

Debbie W.: Yeah, I love your tenacity Gloria, good for you.

Gloria: Well you know, I love what you were talking about with the resilience, because that's so, so critical. Did you say you were doing a group on that, or a discussion?

Debbie W.: I'm in the process of finishing up one of the workshops. Now, the workshop will be the new way that Hadley's are doing courses, unquote. The workshops, you may have been reading about them in our newsletter, and one of the topics is resilience. So that will be offered. And we do hope in the future, I cannot give you any dates, maybe to have a group on resilience. So stay tuned for that. But that won't be until 2020.

Gloria 2: I guess I’ll look for the workshop though, because you know, there's definitely the need for a lot of support from so many different places, in order to stay resilient.

Debbie W.: Okay.

Gloria 2: I am always looking.

Debbie W.: Great, thank you, thank you. We're coming to the end of our time, and one of the things that we like to do each month is to share one or two resources with you. And to encourage you to take that phone number, or email address, or website, and do some research. And then come back to the group next month, and tell us what you discovered. Share with us what you may have learned that this organization offers, or this resource offers. Did you find your experience to be easy? Do you feel that you were a good self-advocate? Did you call up the organization and somebody said, "No, we can't help you," and you gave up, and just didn't... you had a roadblock and you didn't go any further?

So, before we end, Steve's going to share the two resources for this month, and I encourage all of you to do some ... challenge yourself to try to see what those organizations can provide you personally. Practice your self-advocacy skills. And then come back to us next month and share your experience.

So I'm going to wrap up and then turn it over to Steve, and we'll ending our first session of Resource Roundtable. I thank everybody for attending, and I hope everybody comes back next month, and that we can continue to have a conversation about all things resources and really help each other. We'll go with the theme, help each other build our resilience skills.

So Steve, I'll turn it over to you to share those two resources for the coming month.

Steve K.: I love that theme, the theme of resilience. I'm going to return to the two resources that I gave out before. The first one is the American Printing House for the Blind. It's a connect center, and that's an 800 number. It is 232-5463. 232-5463. And you know, I heard a couple of people ask questions, or express an interest in learning a little bit more, and you know, I'm urging, hoping, that you know, folks will kind of take a look at these two numbers, give them a call, and hone some of their goals and their advocacy skills down by, you know, seeing where they can get further direction.

The second number is just the Hadley information and referral number, which is 800-323-4238. That's 800-323-4238.

Thank you all.